I had Samar’s appt today. to follow up on the 2nd blood test we did on the stuff he has been eating, stuff like arrowroot,rice, potatoes, sweet potato, tapioca flour,turkey, pork, beef. NK was suppose to go with me to this appt. The kids are on summer vacation and I didnt want to drag all 4. A neighbour kindly offered to keep the older 3. When I dropped them off, Samar started screaming that he wanted to go to the playdate. He kept screaming throughout the drive, “let me out stupid car seat Let me out stupid car seat”
He wouldnt come out of the van and went in the back row and sat there for 6 mins. Finally he needed to pee and so we rushed to the doctor’s office. There, he kept screaming his head and wouldnt come out of the bathroom. I was going to start bawling myself, even before seeing the doctor. Luckily, a nurse came and got him and offered him a movie.
Watching Max and Ruby
These past few days, his skin has been horrible. He has open sores on the corner of his mouth, under both eyes, the back of his knees, his arm joints. No matter how much antibiotic cream or lotion I douse him in, his skin is dry as the Sahara? He has been up at night, screaming it itches!
He hasn’t eaten any strawberries, corn(well unless the corn syrup that one find in almost everything) or applesauce. and yet his skin was so so bad.. The pollen count in my city was extremely high as well, so that could have been a factor.
Anyways, the doctor asked me, Am I going to cry again ? I said I will try not to. So he tested positive for rice, a 13.20..the rest of the things were negative. I said, what is he going to eat then? What am I going to feed him now? he has rice and rice pancakes almost everyday.
So the doctor gives me a list
- potato
- Honey
- pork
- Beef
- Turkey
- Tapioca
- Fish
- Clams
- Buckwheat-I googled and this is kuttu atta. I never even knew it
- Maple Syrup
- Berries except strawberries
- Oranges
- Applesauce but not apples
- Grapes and raisin
- Olive Oil
- Saffola Oil
- Canola Oil
- Spinach
- Broccoli
- Cabbage
- Cauliflower
- Squash
- Pumpkin
- his Special Neocate formula
- FORGOT TO ADD CHICKEN
And a daily multivitamin.he also wants me to implement a daily bleach bath. He said its been very successful with 2-3 of his patients whose skin is as bad as Samar’s. The reader that told me about Mimys ,He gave me another lotion similar to that. A prednisolone and an antibiotic to help his skin for now.
We do this diet for 2 weeks,along with his bleach baths. I go back and evaluate with him and we re-introduce one food at one time. Any food that got a value of less than 20 on the blood test(corn, apple,rice,strawberries to name a few )
I have decided that I need to go on this diet with him. I told the dr that and he said he highly recommended it because it will be easier for me than to figure out to what to feed him. My only exception would be milk(for my morning and evening chai). Am I insane? Maybe! Will I be able to do it? Maybe I would lose a bunch of weight and label this diet the Samar Diet and become rich?
The sad thing is I dont know how the other kids would feel about us restricting so many things.. I havent bought strawberries since 3 weeks. If he was an only child, my life would be much easier…but to balance the needs(wants) of the older 3 with his is tough. They already accuse me of favouring Samar more because I dont allow things he cannot eat in the house. Ice-cream,cookies, kettle corn amongst many more.
Sigh, lately all I seem to be doing is crying and whining.I keep telling myself, other parents have it worse than just not seeing their child eat strawberries. To suck it up and not be so dramatic about it and yet, even now I have tears in my eyes while composing this post. Me, the heartless bitch who would never cried. I NEVER CRIED>.Everyone in my household would be crying and I would be the strong one and now the slightest thing makes me cry.
*My tears have dried up.
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